Triple Negative Breast Cancer Awareness Day is March 3.
March 2nd marks the one year anniversary of my double mastectomy. Little did I know that it would be a series of 4 surgeries and multiple visits to the plastic surgeon before I could get some semblance of natural looking breasts back. (But still no nipples :))
TNBC accounts for 30% of all breast cancers and is the rarer and more aggressive type. It is also more likely to reoccur. Often it is harder to detect metastasis since no blood work can show a possible recurrence.
Please consider donating to my page for TNBC Awareness. 100% of my fundraising goes to TNBC research.
Here is the link to my page.
Blessings,
Laura
Showing posts with label TNBC. Show all posts
Showing posts with label TNBC. Show all posts
Wednesday, February 22, 2017
Friday, August 19, 2016
The Sisterhood
It's a sisterhood I didn't apply for, but I'm proud to be a member. As soon as you hear the words, " You have breast cancer." You automatically file your application. Each member chooses how involved they want to be in "the club," whether just checking in every so often. Then there are those who become the pledge trainers, taking in the newbies and making sure everyone has information. No matter how committed, the sisterhood is part of your life. I am blessed to be a member of this group of fighters.
When you have cancer, no one truly knows what you're going through or how you're feeling except those who have gone before you. Some lead the way with positivity and others with a sadness that can be overwhelming. Everyone handles the diagnosis differently and no one way is the right way.
One time when I went to visit the Silos in Waco, I was checking out. I was still in chemo and had no hair, only a hat on. The checker asked me if I was in treatment and when I said, "yes" she reached across the counter and hugged me, saying, "I'm a survivor too. Welcome to the sisterhood." I started crying. There is some magical bond that occurs over this devastating disease.
Recently, while in LA for my TNBC study blood draw, I made arrangements to meet up with a new "sister" from a breast cancer Facebook group. We met for lunch and visited like we were old friends. In fact, we plan to meet up again on my next trip down. What a blessing to have these new friends all over the country and world. I hear over and over that breast cancer has blessed people's lives. I didn't understand that at the beginning of my diagnosis but I do now. I've learned so much about myself, my friends and my family facing this fight. Experiences I hope to never repeat made me stronger because I had them. So if you at some point have to join the sisterhood, know that it is an honor to fight beside some of the fiercest, strongest women, to learn from those who went before you and to help those joined after.
Blessings to all,
Laura
Blessings to all,
Laura
Monday, January 4, 2016
Ignorance is Bliss...Until it Isn't
So I've heard that ignorance is bliss. Sometimes it is, but often it is a coping skill for denial.
When I was first diagnosed in October, all I could do was focus on the task at hand...and that was chemo. What would it be like? When will my hair fall out? Will I be able to work? What should I expect? How will my family and friends handle this? My world was full of questions and I could only really focus on that aspect of my cancer.
Sure I knew I was triple negative and that I didn't have any markers for hormone receptors. (That means that my cancer is not fed by hormones.) I bet you didn't know that there were multiple types of breast cancer? Neither did I until you're in it, or know someone who is. All this time, I've convinced myself that triple negative is the "easier" of the two. I won't have continued chemo pills, no port, no Herceptin for 5 years. When I'm done with all the chemo and surgeries, I'm done, or so I thought...
I finally started researching triple negative breast cancer. Here are some facts and tidbits. I know my cancer responds to chemo best because of its grade, but is also the kind more likely to reoccur in other parts of the body. After talking with my oncologist today and asking about how we go about screening for cancer over the next 5 years, the answer was vague. There are no tried and true ways to scan other than mammograms. The problem is that TNBC often shows up in other parts of the body, like the liver, bones, etc. I am worried that I will be hyper sensitive to every little ache and pain. Who knows? Maybe ignorance was bliss.
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